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iCan Bike Camp – Groton, MA over April school vacation week

Health, Our Blog

Does your child want to learn to ride a bike? Sign up for iCan Bike Camp from April 18-22 at Lawrence Academy in Groton. The camp is a five day program that provides the supports and equipment for individuals ages 8 and older to learn to ride a bicycle.

Trained staff help individuals learn to ride a two-wheel bicycle using special adaptive bikes. Riders attend one 75 minute session each day for five days. Over the course of the week, the bikes are adjusted to challenge the rider’s balance.

For more information, visit www.icanshine.org/ican-bike-groton-ma

March 20, 2016/0 Comments/by Julie Messina
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Keeping Children and Adolescents with Down Syndrome Healthy Seminar

Health, Our Blog

For more info visit www.bu.edu/sargent

Keeping Children and Adolescents with Down Syndrome Healthy: Medical Updates for Health Care Professionals, April 7, 2016

Presented by Dr. Brian G. Skotko and Melissa J. Reilly 

Thursday, April 7, 2016 | 5:00-6:00 p.m.
Questrom’s Rafiki B. Hariri Building, Room 105
595 Commonwealth Avenue | Boston, Massachusetts


This talk will discuss new healthcare guidelines for people with Down syndrome from the American Academy of Pediatrics. Presenters will tackle common questions and concerns from patients’ parents about their sons and daughters with Down syndrome, providing answers and action steps based on the latest clinical research.

About the speakers 
Dr. Skotko is a board-certified medical geneticist and co-director of the Down Syndrome Program at Massachusetts General Hospital. He has dedicated his career to children with cognitive and development disabilities. In 2001, he co-authored the national award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters.
Ms. Reilly works at the Massachusetts State House for Senator Jamie Eldridge and is a classroom assistant at the Learning Program of Boston as well as a motivational speaker. In 2013, she represented the United States as an alpine skier at the Special Olympics World Games in Pyeong Chang, South Korea. She was also a member of Team USA in 2005 at the World Games in Nagano, Japan. In May of 2010 Reilly was inducted into the Special Olympics Hall of Fame.
Attendees are invited to a reception following the lecture in the atrium adjacent the auditorium.

Admission is free. The public is welcome. 

Contact Katy Staley at [email protected] or 617-353-2705 for more details or to request specific accommodations. You may also contact BU Disability Services at [email protected] mailto:[email protected].

March 20, 2016/0 Comments/by Paula Moyer
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NDSC: 21 Quotes in 21 Days by 21 People with Trisomy 21

Advocacy, Education, In the Media

By National Down Syndrome Congress | www.ndsc.org

Day 18: Carrie, Rome, New York

“I took the ‘dis’ away from disability and made it my ability to make this world
a better place for all of those with special needs.”

http://www.ndsccenter.org/day-18-21-quotes-in-21-days-by-21-people-with-trisomy-21/

 

March 18, 2016/0 Comments/by Other
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HOW DO YOU SEE ME? | March 21 – World Down Syndrome Day | #HowDoYouSeeMe

Education, Our Blog

By AnnaRose | YouTube: How Do You See Me Video

Let’s change the way we look at people with Down syndrome. AnnaRose is a nineteen year old from NJ. She’s a full time college student who works part-time at a physical therapy center and enjoys basketball and swimming through the Special Olympics NJ. AnnaRose, as many people with Down syndrome, only wants to realize her potential and live a meaningful, beautiful life.

Watch Now

 

March 17, 2016/0 Comments/by Other
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Model with Down syndrome stars in elegant wedding photo shoot

Advocacy, In the Media

P.C.: flickr

By Remi Merhi | www.cnn.com

(CNN) Madeline Stuart, an 18-year-old Australian model with Down syndrome, continues to inspire with her latest photo shoot as a beautiful bride.

Stuart is working to change the way people view disabilities.

“She wants people to know that Down Syndrome is a blessing, something to be celebrated,” according to her website.

http://www.cnn.com/2016/03/11/living/madeline-stuart-wedding-photo-shoot-feat/

March 11, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2016/03/wedding_gown_back_web.jpg 352 432 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-11 20:16:502016-05-16 16:28:24Model with Down syndrome stars in elegant wedding photo shoot

Camp Sunshine – April 17-22, 2016

Education, Our Blog

Families of children with Down syndrome and leukemia (where-ever you may be in your treatment journey), you are cordially invited to apply to attend CAMP SUNSHINE from April 17-22, 2016

During this special oncology session families of children with Down syndrome and leukemia are encouraged to apply. Please consider joining us for an amazing opportunity for respite, reflection, relaxation, caring and support and of course, recreation and FUN!

For more information from Camp Sunshine please feel free to call 207-655-3800 or email [email protected]. Applications can be mailed to: [email protected] or faxed to: 207-655-3825 or mailed to:
Camp Sunshine, 35 Acadia Rd., Casco, ME 04015

Feel free to call us as well. We’ve been there and we know.
Kathy and Mark Campbell, 978-343-0159 or [email protected]

March 7, 2016/0 Comments/by Julie Messina
https://stagecpanel.321foundation.org/wp-content/uploads/2016/03/CampSunshineLogo.jpg 341 800 Julie Messina https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Julie Messina2016-03-07 19:51:212016-03-21 15:49:00Camp Sunshine – April 17-22, 2016

Entire Town Secretly Learns Sign Language to Give a Deaf Man Best Day of His Life

Advocacy, Education, In the Media

By Alexandra Maslow | People.com

On Dec. 24, 2014, Muharrem and his sister, Ozlem, took a walk around their community in Bagcilar, a suburban district of Istanbul, only to find that everyone they encountered greeted them in sign language.

In this Samsung commercial to promote the company’s new video call center for the hearing impaired, locals are shown learning to sign in anticipation of the big day. Video cameras were also placed around the city to capture those moments when Muharrem was greeted at a bagel shop, or offered an apple, or being apologized to when a woman bumps into him – all delivered in sign language.

http://www.people.com/people/mobile/article/0,,20907160,00.html

March 6, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2016/03/Town-learns-sign-language-web.jpg 313 650 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-06 19:06:212016-03-06 19:08:27Entire Town Secretly Learns Sign Language to Give a Deaf Man Best Day of His Life

Why do we use the Expected-Unexpected Social Thinking Vocabulary?

Advocacy, Education, In the Media

By Michelle Garcia Winner | socialthinking.com

Question: I was wondering if you could help me explain some of the language you teach.  I am having some trouble with the teachers I am working with wanting to use the language “expected and unexpected.”  I have utilized many consultation tactics and they still are using the language “appropriate and inappropriate.”  I am trying to think outside the box a little and thought maybe if the explanation came from you, they would understand the terminology better.

Our Response:

Historically there is a tendency to think we can teach students to learn social behavior by setting behavioral expectations and then simply telling them what we expect from them or telling them when we are disappointed in their behavior. To this end, professionals and parents, upon noticing a student doing an undesired behavior, will tell the student, “That’s inappropriate.” Rarely do you hear teachers telling students their behaviors are “appropriate.”  When we interpret the meaning behind the use of the phrase “That’s inappropriate,” we usually find it is used in a manner that reflects the speaker is disappointed in the student if not upset with him or her. Therefore it is used to scold and redirect rather than to teach.

https://www.socialthinking.com/Articles?name=Why+do+We+Use+the+Expected-Unexpected+Social+Thinking+Vocabulary+Article

March 6, 2016/0 Comments/by Other
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All lives matter | Karen Gaffney | TEDxPortland

Advocacy, Education, Health, In the Media

By Karen Gaffney | TedxPortland

Karen Gaffney, Self-Advocate and World-Renown Swimmer, presents her TEDxPortland talk, “All Lives Matter” and makes the case against termination of pregnancies diagnosed with Down syndrome. Articulate and persuasive, this is worth 15 mins of your time.

Watch Now

March 1, 2016/0 Comments/by Other
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