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Lifespan Down Syndrome Clinic Opens in Southeast U.S.

Featured, In the Media

ORLANDO, Fla. — Amid a critical shortage of providers, AdventHealth for Children in Orlando has launched a clinic that will treat patients with Down syndrome from diagnosis throughout adulthood, a first in the Southeast. AdventHealth for Children is offering continuity of care for patients with Down syndrome by creating one location where someone with Down syndrome can get treatment for their entire life. Last week was the grand opening of the SMILE with Stella Tremonti Down Syndrome Clinic, named for the daughter of founding donors Victoria and Mark Tremonti, former guitarist for the Grammy award-winning band Creed.

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October 30, 2023/0 Comments/by Admin
https://stagecpanel.321foundation.org/wp-content/uploads/2023/10/Screen-Shot-2023-10-30-at-2.30.33-PM.png 830 1324 Admin https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Admin2023-10-30 00:00:222023-10-30 18:31:25Lifespan Down Syndrome Clinic Opens in Southeast U.S.

Maximum Federal SSI Payment will be $943/month in 2024

Featured
People with disabilities receiving Social Security and Supplemental Security Income benefits will see their monthly payments rise by 3.2% in 2024. The jump is due to an automatic Cost-Of-Living Adjustment (COLA). The annual adjustment, which is intended to account for inflation (notable in recent years), is based on the CPI from the U.S. Department of Labor’s Bureau of Labor Statistics. The increase will mean that the maximum federal SSI payment for individuals will reach $943 per month next year, up from $914 currently, according to the Social Security Administration, a modest increase far short of the 8.7% increase in 2023.  Not sure this increase will truly be enough for us to keep up with inflation given the higher costs many of us are seeing.

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October 12, 2023/0 Comments/by Admin
https://stagecpanel.321foundation.org/wp-content/uploads/2022/02/th-969476642.jpg 295 474 Admin https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Admin2023-10-12 00:00:372023-10-12 18:06:25Maximum Federal SSI Payment will be $943/month in 2024

Chris Nikic Inspires Others!

Featured, In the Media

In November, Special Olympics athlete Chris Nikic became the first person with Down syndrome to complete an Ironman triathlon. Nikic, 21, finished a 2.4-mile swim, a 112-mile bike ride and a 26.2-mile marathon run at the Ironman Florida competition in Panama City Beach in 16 hours, 46 minutes and 9 seconds, just 14 minutes under the 17-hour cutoff time. Throughout his training and completion of the race, Nikic inspired others to follow in his footsteps.

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February 4, 2022/0 Comments/by Admin
https://stagecpanel.321foundation.org/wp-content/uploads/2022/02/chris-nicik.jpg 442 570 Admin https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Admin2022-02-04 18:23:162022-02-04 18:23:16Chris Nikic Inspires Others!

Thankful Every Day for the Decision that I Made

Featured, In the Media, Our Blog

Our 16-year-old daughter, Penny, wakes up to the beeping of her alarm. On her way downstairs, she picks up her iPhone to check her texts. She eats breakfast, gathers her sneakers and pompoms for cheerleading and heads to school. When Penny was diagnosed with Down syndrome a few hours after she was born, I didn’t expect our mornings to feel so ordinary.

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February 3, 2022/0 Comments/by Admin
https://stagecpanel.321foundation.org/wp-content/uploads/2022/02/01beccker-superJumbo.webp 2048 2048 Admin https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Admin2022-02-03 19:14:412022-02-03 19:16:11Thankful Every Day for the Decision that I Made

COVID-19 Disproportionately Impacting Those With Developmental Disabilities

Featured, In the Media

We’ve all been impacted by Covid, but our community in particular has been hard hit.

A letter published recently in the American Journal of Psychiatry on behalf of the directors of the nation’s 13 intellectual and developmental disabilities research centers — which are funded by the National Institutes of Health — is sounding the alarm about the devastating impact the pandemic has had on an already vulnerable population.

https://www.disabilityscoop.com/2020/09/08/covid-19-disproportionately-impacting-developmental-disabilities/28909/

September 10, 2020/0 Comments/by Michelle Alford
https://stagecpanel.321foundation.org/wp-content/uploads/2020/09/ds200504_covid-668x418-1.jpg 418 668 Michelle Alford https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Michelle Alford2020-09-10 21:23:022020-09-10 21:28:02COVID-19 Disproportionately Impacting Those With Developmental Disabilities

Down Syndrome Pen Pal Program

Featured, In the Media, Our Blog

WINSTON-SALEM, N.C. – A program that started in North Carolina to connect people with Down syndrome during social distancing is going global.

Every week, 14-year-old Melia Griffin goes to check the mail in hopes she will receive a letter from her pen pal Jenna. She is one of 125 people participating in the Down Syndrome Association of Greater Winston-Salem’s pen pal program. After social distancing requirements forced the organization to cancel all of its events and programming, the group thought of a way to help members socially and emotionally connect. Melia’s mother, Kendra Griffin, said it’s doing exactly that.

“Getting her letters and knowing that there’s not that many people with Down syndrome so it’s comforting as a mom to know that there’s other families just like ours not just here in the Triad but all around the world really,” Kendra Griffin said.

Melia lives in North Carolina and her pen pal Jenna lives in Michigan. After three weeks of sending letters back and fourth, Melia said the two have created a special bond.

“I want to go to Michigan, and I want to see her,” Melia Griffin said.

There are many relationships being formed through this program. Clay Janke, 8, lives in Nebraska. His pen pal is Josiah from North Carolina. Clay’s mother, Leah Janke said it’s a welcome distraction for the entire family.

“There’s something about paper mail. We’re taking anything that’s fun and exciting right now while everyone’s at home, so getting paper mail has been really fun and Clay likes to run out and check the mail box and see if he has any mail,” Janke said.

The program keeps growing, with no end in sight. Down Syndrome Association board president, McNeil Cronin, said the group’s goal is to bring on as many people as possible.

“Right now we are at over 30 states in the U.S., three different countries, so we’ve gone international, and we have over 125 members currently, and we are really proud of that. It’s struck a core with people all over the world, and it started right here in Winston-Salem,” Cronin added.

Participants range from the ages of 1 to 48 and are all from different races and backgrounds.

If your child has Down syndrome and would be interested in participating in the pen pal program, you can e-mail Executive Director, Jay Callahan, at [email protected].

August 11, 2020/0 Comments/by Michelle Alford
https://stagecpanel.321foundation.org/wp-content/uploads/2020/08/Pen-Pal-Cropped.png 347 596 Michelle Alford https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Michelle Alford2020-08-11 16:43:532020-09-10 21:33:05Down Syndrome Pen Pal Program

Meet Kayla Mckeon

Advocacy, Featured, In the Media

Kayla McKeon…the FIRST individual with Down syndrome to serve as a lobbyist in Washington DC

October 14, 2019/0 Comments/by Admin
https://stagecpanel.321foundation.org/wp-content/uploads/2019/10/2018-Twitter-10-2a.png 569 473 Admin https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Admin2019-10-14 21:00:502020-09-09 17:18:35Meet Kayla Mckeon
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