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MDSC 33rd Annual Conference/ Awards Luncheon – March 25

Advocacy, Cognition, Education, Health, In the Media

Please join us at the MDSC’s 33rd Annual Conference
Saturday, March 25, 2017 | 8:00 am – 4:00 pm
DCU Center, Worcester, MA #CountMeIn

Each spring, hundreds of people with Down syndrome, their family members, health care professionals and educators from across New England attend our Annual Conference. Participants gather to hear the latest research findings and important information from national and local experts on a range of topics related to Down syndrome. They also share stories, celebrate victories, advocate for acceptance and inclusion, and reunite with other MDSC families.

Our conference is for parents, educators, self advocates, brothers and sisters, other family members, and professionals.

COUNT ME IN THEME FOR 2017
Our community includes individuals with the full spectrum of interests and abilities, people of all different cultures and backgrounds, individuals with unique viewpoints and personalities. What ties us together? Ultimately, all people with Down syndrome and their families want to be COUNTED and deserve to be INCLUDED.

in 2017, we are excited to celebrate the possibilities and potential of all people with Down syndrome. Join us as we bring out Count Me In theme to life. REGISTER @ www.mdsc.kintera.org/countmein

We are collecting photos for our Count Me In video collage. Email your photo (and your ‘Count Me In’ stories, if you have them)
to [email protected].

At our Annual Conference, we present awards for Employer of the Year, Media member of the Year, Educator of the Year and present the Crocker Award of Excellence. And our Awards Luncheon will feature the incredible achievements of the self advocates in our community, including:

**Collete Divitto, Owner, Collettey’s Cookies, Featured on CBS Nightly News
**Graham Campbell, Pianist
**Sindrome Down Folklore Latino Dance Troop and Good Morning America

If you attend our Annual Conference, you can choose among several tracks:

General Session Workshops – Parents, family member and professionals will learn from expert speakers about how to help individuals with Down syndrome acquire the necessary skills to lead fuller, healthier, more independent lives.

Self-Advocate Workshops – Young adults with Down syndrome will have an opportunity to network and share experiences, strengthen their self-advocacy skills, and learn about the importance of leading a healthy life and building meaningful relationships.

Brothers and Sisters Workshops – Siblings of people with Down syndrome will hear how other brothers and sisters deal with the joys and challenges inherent in being a sibling. Creates a forum for sharing stories and learning the importance of advocacy.

Education Workshops – Educators and parents will learn best practices for educating students with Down syndrome in an inclusive classroom, as well as the benefits of inclusion for all learners.

>> Register Today

March 12, 2017/0 Comments/by Other
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2017 SPAN Special Education Conference and School Fair

Advocacy, Education, In the Media, Our Blog

Hosted by Special Education Conference and School Fair

2017 SPAN Special Education Conference and School & 7th Annual School Fair
Thursday, March 23 | 8:30 am – 2:30 pm
Best Western Royal Plaza Hotel, 181 Boston Post Road, Marlborough, MA  01752

This annual event continues our great tradition of gathering 50-plus special education schools. Former legislature Tom Sannicandro will provide our keynote address and moderate a panel of distinguished leaders in the field discussing “What’s Next for Special Education in Massachusetts?”.  Visit our Conference & School Fair pages for more information.
Former state legislator Tom Sannicandro will join us for a morning Keynote address. Tom will inspire us with his extensive experience as a special education parent, attorney and advocate.  Presentations throughout the day will zero in on What’s Next in Special Education for Massachusetts?  Speakers and panelists will include attorneys, legislators and advocates from nonprofit agencies who work on behalf of children with disabilities. Topics covered will include the upcoming Supreme Court case considering FAPE, the re-authorization of the Every Student Succeeds Act (ESSA), formerly known as No Child Left Behind (NCLB), and the potential effects on Special Education Policies and practices here in Massachusetts. 

Morning Discussion
Matthew J. Deninger will discuss the upcoming Supreme Court case considering FAPE,the re-authorization of the Every Student Succeeds Act (ESSA), formerly known as No Child Left Behind (NCLB)
​
Afternoon panel:  A specialist panel on “What’s Next for Special Education in Massachusetts?” features respected State Representative Alice Peisch, attorneys Eileen Hagerty of Kotin, Crabtree and Strong, Julia Landau, Esq., of the Massachusetts Advocates for Children, and Richard Robison of the Federation for Children with Special Needs. The panel will discuss the upcoming Supreme Court case on what constitutes FAPE, special education legislative changes in Massachusetts, and advocacy projects to influence Massachusetts special education law and policy.Free IEP Clinics: Discuss your specific situation and IEP concerns with an experienced Special Education Advocate/Parent Consultant.The Forum:  Representatives from a wide range of Special Education Schools will present information regarding student profiles, program services, admission requirements and placement options to professionals within the special education field. View our list of attending schools.Also Exhibiting:   A select list of Special Education Resource vendors and service providers.​Who Will Attend:  Parents, Special Education Advocates, Special Education Administrators, Special Education Attorneys, Out of District Coordinators, Therapeutic Service Providers, Therapeutic or Clinical Evaluators, Related Service Providers.

We look forward to seeing you soon!

>> Register Today

March 10, 2017/0 Comments/by Paula Moyer
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A Full Life Ahead: Creating Housing Options

Advocacy, Education, Health, In the Media

By Massachusetts Families Organizing for Change (MFOFC)

A Full Life Ahead Series is offered in the Metro Boston Region by Massachusetts Families Organizing for Change in partnership with with Riverside Community Care and Advocates.

—————————————————————-

A Full Life Ahead: Creating Housing Options 
Thursday, April 13, 2017 6:30 – 8:30 PM
Advocates Main Office, 1881 Worcester Road, Framingham, MA

How can I develop a housing option for my adult child, even if they are not prioritized for residential services? Come learn about governmental funding streams, how they can be combined, and how to supplement them with your own resources. The importance of building your child’s skills will also be discussed.

>> Register

March 6, 2017/0 Comments/by Paula Moyer
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11-Year-Old With Down Syndrome’s Friends Go to Bat So They Can Attend Middle School Together

Advocacy, Education, In the Media

From LPB, “Heartwarming story – kids can be powerful!”


By Genevieve Shaw Brown | Yahoo.com

When an 11-year-old boy with Down syndrome was told he would not be able to attend middle school with his friends in the fall, they went to bat for him.

Brady Green’s classmates went to a school board meeting to speak about why the boy should attend Blevins Middle School with them in September. Six fifth-graders from Brady’s elementary school in Fort Collins, Colorado, took to the podium to speak about how he has enriched their lives.

https://gma.yahoo.com/11-old-down-syndromes-friends-bat-attend-middle-152706202–abc-news-parenting.html#

May 20, 2016/0 Comments/by Pamela Booth
https://stagecpanel.321foundation.org/wp-content/uploads/2016/05/yahoo_news.jpeg 141 358 Pamela Booth https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Pamela Booth2016-05-20 18:16:282016-05-20 18:18:1411-Year-Old With Down Syndrome’s Friends Go to Bat So They Can Attend Middle School Together

California Woman with Down Syndrome Fulfills Dream of Becoming a Zumba Instructor: ‘When She’s with the Music, She’s Got It,’ Says Mom

Advocacy, Health, In the Media

From LPB, “Lovely to watch this young lady with Down syndrome with the Zumba moves! Won’t you love to try Yulissa Arescurenaga’s class?”


By Tiare Dunlap | people.com

When Yulissa Arescurenaga took her first Zumba class in 2008, she dreamed of one day making it her life’s work by becoming a certified instructor. The only problem was that there were no other instructors out there like Arescurenaga, who has Down syndrome.

http://www.people.com/article/Yulissa-Arescurenaga-becomes-first-us-zumba-teacher-with-down-syndrome

May 16, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2016/05/Zumba-logo.png 278 640 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-05-16 17:51:052016-05-20 17:57:26California Woman with Down Syndrome Fulfills Dream of Becoming a Zumba Instructor: ‘When She’s with the Music, She’s Got It,’ Says Mom

My Worst Nightmare — What If I Accidentally Raise The Bully?

Advocacy, Education, In the Media

P.C.: flickr

From LPB, “After elementary school, most kids with DS are at the bottom of the Social Food Chain. For those with neurotypical kids wishing to avoid accidentally raising a bully it’s simply not enough to instruct your children to, “Be nice to others!” You’ve got to be more specific than that. Kids think if they aren’t being outright unkind, they are being nice.”


By Leslie Blanchard | huffingtonpost.com

I will never forget the day my daughter told me that Bethany, a girl in her 4th grade class, was annoying her.

“What is she doing to you?” I questioned, instinctively protective.

“She’s following me around on the playground and sitting by me at lunch!” she quipped, as if that would sum things right up and get me squarely on her side of the matter.

“You mean she’s trying to be friends with you?”
 I asked incredulously.

http://www.huffingtonpost.com/leslie-blanchard/where-helicopter-parents-need-to-hover_b_9628142.html

April 19, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2016/05/School_Locker_web.gif 324 432 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-04-19 14:28:092016-05-16 16:26:36My Worst Nightmare — What If I Accidentally Raise The Bully?

TV Show Honored for Highlighting Down Syndrome

Advocacy, Education, In the Media

From LPB, “A documentary series following the lives of young people with Down syndrome is getting a special honor from the people behind the Emmy Awards. A&E Network series “Born This Way” is one of six shows named to the Television Academy Honors. The annual recognition from the Academy of Television Arts & Sciences calls out programs that leverage television to “tackle complex issues and advance social change.””


By Shaun Heasley | disabilityscoop.com

A documentary series following the lives of young people with Down syndrome is getting a special honor from the people behind the Emmy Awards.

The A&E Network series “Born This Way” is one of six shows named to the Television Academy Honors.

The annual recognition from the Academy of Television Arts & Sciences — the Hollywood organization responsible for the Emmy Awards — calls out programs that leverage television to “tackle complex issues and advance social change.”

TV Show Honored For Highlighting Down Syndrome

April 18, 2016/0 Comments/by Other
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Exciting New Research from Spain

Advocacy, Health, In the Media

From LBP, “The Jerome Lejeune Foundation has been developing therapeutic treatments related to the overexpression of the gene Dryk1A (implicated for causing intellectual disability) for those living with Down syndrome. Clinical trials of interest to us include the use of EGCG, a natural substance found in green tea, as an inhibitor of Dryk1A. They have just announced a new partnership with Manros Therapeutics to develop a new drug from a molecule described in scientific literature as the most powerful inhibitor of Dryk1A.” 


By mbradford | lejeuneusa.org

The Jerome Lejeune Foundation has been intensely involved in supporting the development of therapeutic treatments related to the overexpression of the gene Dryk1A for those living with Down syndrome.

http://lejeuneusa.org/blog/exciting-new-research-spain#.Vwcyi2NXndk

April 6, 2016/0 Comments/by Other
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Meet Katie Meade, the First Woman with Down Syndrome to Be Featured as the Face of a Beauty Product

Advocacy, Education, Health, In the Media

P.C.: flickr

From LPB,  “Love that we are seeing more types of beauty being appreciated! Katie Meade is a Best Buddies spokesperson and the new face of beauty for a hair products company.”


By Jillian Ruffo | people.com

New haircare line, Beauty & Pin-Ups, is breaking down barriers. The brand introduced 32-year-old Katie Meade as the face of their latest launch: Fearless Hair Rescue Treatment. We caught up with Meade to talk about the partnership, and quickly learned she’s the type of inspiration the beauty world has been missing.

http://stylenews.people.com/style/2016/04/01/meet-katie-meade-the-first-woman-with-down-syndrome-to-be-featured-as-the-face-of-a-beauty-product/

 

April 1, 2016/0 Comments/by Other
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New Indiana law bans abortions based on fetal genetic abnormalities like Down syndrome

Advocacy, Health, In the Media

P.C.: flickr

From LPB, “Indiana has become the second state in the nation, following North Dakota, to ban abortions motivated by objections to Down syndrome. Gov. Mike Pence signed the bill yesterday to protect termination of pregnancies simply because of a disability, race or sex.”


By INDIANAPOLIS (Associated Press) | fox32chicago.com

Indiana has a strict new abortion law, one that bans abortions on the basis of fetal abnormalities like Down syndrome, and also requires that all fetal remains be buried or cremated.

Republican Gov. Mike Pence signed the measure just hours ahead of his deadline to take action on the proposal approved by the Republican-dominated Legislature two weeks ago, the governor’s office said. It is due to take effect in July, but Planned Parenthood of Indiana and Kentucky said it will ask a court to block the measure before that can happen.

http://www.fox32chicago.com/news/local/113330932-story

March 24, 2016/0 Comments/by Other
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