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Meet Katie Meade, the First Woman with Down Syndrome to Be Featured as the Face of a Beauty Product

Advocacy, Education, Health, In the Media

P.C.: flickr

From LPB,  “Love that we are seeing more types of beauty being appreciated! Katie Meade is a Best Buddies spokesperson and the new face of beauty for a hair products company.”


By Jillian Ruffo | people.com

New haircare line, Beauty & Pin-Ups, is breaking down barriers. The brand introduced 32-year-old Katie Meade as the face of their latest launch: Fearless Hair Rescue Treatment. We caught up with Meade to talk about the partnership, and quickly learned she’s the type of inspiration the beauty world has been missing.

http://stylenews.people.com/style/2016/04/01/meet-katie-meade-the-first-woman-with-down-syndrome-to-be-featured-as-the-face-of-a-beauty-product/

 

April 1, 2016/0 Comments/by Other
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Wings for Autism: Saturday, April 9th

Advocacy, Education, Our Blog

Wings for Autism
Saturday, April 9th | Boston Logan Airport, Terminal E
A free event

Registration is required. Click here to register.


Travel is stressful in general but can be particularly difficult for families who have a child with special needs. Wings for Autism events are a “test run” through the airport boarding process–specifically designed for families who have a child with an autism spectrum disorder.

Families are able to practice:

• Entering the airport
• The check-in process and checking bags
• Security screening
• Boarding the plane
• Preparing for take-off
• Exiting the plane

Children and their families gain real life, air travel experience–sometimes finding that more practice is necessary but often discovering that air travel is indeed possible!

Check-in and boarding times begin at 9 am and will be held throughout the morning. Specific times will be assigned closer to the date of the event. Questions? Please contact: [email protected]

Wings for Autism was created by the Charles River Center, a chapter of The Arc located in Needham, MA, in collaboration with the Mass Port Authority and TSA. This is the 11th Wings event at Logan Airport. Since 2011, thousands of families have participated, and Wings events are now taking place in 22 cities across the country.

March 25, 2016/0 Comments/by Paula Moyer
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Paid Fellowship Opportunity: The 2016 Allen C. Crocker Family Fellowship

Advocacy, Education, Our Blog

Submitted by Melanie Perkins McLaughlin

Just want to be sure folks know about the Crocker Fellowship – a PAID part-time fellowship learning about disability policy and leadership with a capstone project. Several LPB alum are former Crocker fellows.


The 2016 Allen C. Crocker Family Fellowship
Applications must be received by Thursday, April 28, 2016, at 5:00 p.m.

Cosponsored by the Mass. Developmental Disabilities Network:
• Institute for Community Inclusion at the University of Massachusetts Boston and Boston Children’s Hospital (University Center for Excellence in Developmental Disabilities)
• E.K. Shriver Center, UMass Medical Center (University Center for Excellence in Developmental Disabilities)
• Massachusetts Developmental Disabilities Council
• Disability Law Center

Overview of the Allen C. Crocker Family Fellowship
To celebrate the work of Dr. Allen C. Crocker and his devotion to families of children with disabilities, the Massachusetts Developmental Disabilities Network (DD Network) created the Allen C. Crocker Family Fellowship. It allows a family member of an individual with a developmental disability to work on a project of their choosing while developing leadership skills under the guidance of Institute for Community Inclusion staff. Through this experience, the Crocker Fellow will gain valuable knowledge about disability policy, services, and supports.

The Crocker Fellow will design and implement a project of their choice that embraces the values and work of Dr. Crocker. Activities will be based on the Crocker Fellow’s interest, and may include grassroots advocacy, public policy analysis, research, and other initiatives to improve the quality of life for people with developmental disabilities and their families.

Concurrent with designing and working on an original project, the Crocker Fellow will learn about public policy and disabilities, the legislative process, and the role of disability agencies in Massachusetts. The Crocker Fellow will attend local and national public policy forums to broaden their knowledge on current disability topics.

The fellowship offers an educational environment designed for an individual who is developing personal advocacy skills and experience. As the Crocker Fellow chooses a project design, develops a work plan, and researches and creates a final product, they are guided by Institute for Community Inclusion faculty and other members of the Massachusetts DD Network to develop the skills they need, understand how the disability system works, and learn how they can create change.

The Crocker Fellow works 20 hours per week. The one-year award includes a stipend of $20,000.

Background
The Allen C. Crocker Family Fellowship was established to honor the lifelong work of Dr. Allen C. Crocker. He was a physician who listened to families, advocated on their behalf, and supported their dreams for their children. Dr. Crocker was a developmental pediatrician who worked at Boston Children’s Hospital for over 60 years. He was the founder and first director of the Developmental Evaluation Clinic at Children’s Hospital that grew into the Institute for Community Inclusion.
Dr. Crocker was not only a world-renowned physician but also an advocate for children with special health care needs and their families. His leadership was influential in Boston, throughout Massachusetts, and across the country as he helped to pioneer the field of developmental-behavioral pediatrics. His dedication to exceptional children and their families was legendary.

Eligibility
The Allen C. Crocker Fellowship is open to Massachusetts residents who have a family member with a developmental disability. The fellowship is designed for individuals who seek to increase their knowledge and skills in the field of developmental disabilities.

Basic Requirements
• Work a minimum of 20 hours per week for a period of 12 months. Most of this time will be spent designing and implementing an original project.
• Spend at least two days per week working at the Institute for Community Inclusion (ICI) in Dorchester.
• Attend Friday morning LEND Fellowship classes in Boston (no summer session).
• Participate in training and other leadership activities at the ICI and the other Massachusetts DD Network programs.
• Attend conferences, trainings, and other events on disability advocacy and public policy.
• Create a project work plan and write quarterly status reports.
• Present the accomplishments of the fellowship at Massachusetts DD Network meetings.
• If appropriate, give a presentation at a regional or national meeting in conjunction with other individuals or colleagues (paper, poster, or verbal presentation).

Timeline: The Crocker Fellowship will begin on July 6, 2016 and will run for a 12-month time period.

  • March 10, 2016 – Application period opens
  • Thursday, April 28 – Applications due
  • Late May – Finalist interviews
  • June 1 – Selection of Crocker Fellow
  • July 5, 2016 – Fellowship begins
  • June 30, 2017 – Fellowship ends

APPLICATION INSTRUCTIONS

The application consists of:
(1) A brief written proposal (2–5 pages) that includes:
a) The applicant’s background and disability experience
b) The proposed project or study activity, including the reason for addressing the chosen topic, project goal, activities, and expected outcomes and impact
c) The applicant’s vision for a post-fellowship role in the disability field
(2) The applicant’s resume
(3) Three letters of reference
Applicants will be judged on their proposed project’s originality, the need for the project, and their potential to complete the project within the year. The potential of the applicant to benefit from the fellowship experience will also be considered.

Send Applications to:

David T. Helm, PhD
Institute for Community Inclusion
University of Massachusetts Boston
100 Morrissey Blvd
Boston, MA 02125

Or by email:
[email protected]

Applications submitted by email should specify “Crocker Fellowship – (applicant’s last name)” in the subject line.

Call David Helm at 857.218.4327 if you have questions.

March 24, 2016/0 Comments/by Other
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New Indiana law bans abortions based on fetal genetic abnormalities like Down syndrome

Advocacy, Health, In the Media

P.C.: flickr

From LPB, “Indiana has become the second state in the nation, following North Dakota, to ban abortions motivated by objections to Down syndrome. Gov. Mike Pence signed the bill yesterday to protect termination of pregnancies simply because of a disability, race or sex.”


By INDIANAPOLIS (Associated Press) | fox32chicago.com

Indiana has a strict new abortion law, one that bans abortions on the basis of fetal abnormalities like Down syndrome, and also requires that all fetal remains be buried or cremated.

Republican Gov. Mike Pence signed the measure just hours ahead of his deadline to take action on the proposal approved by the Republican-dominated Legislature two weeks ago, the governor’s office said. It is due to take effect in July, but Planned Parenthood of Indiana and Kentucky said it will ask a court to block the measure before that can happen.

http://www.fox32chicago.com/news/local/113330932-story

March 24, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2016/05/INDIANAPOLIS_State_House_web.gif 510 1024 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-24 15:24:312016-05-16 16:27:40New Indiana law bans abortions based on fetal genetic abnormalities like Down syndrome

10 Tips for Voters With Disabilities

Advocacy, Education, Our Blog

By U.S. Election Assistance Commission (EAC) | www.eac.gov

This tip sheet from the U.S. Election Assistance Commission examines the options available to help voters with disabilities vote privately and independently.

http://www.eac.gov/assets/1/Documents/508[1]_14Disabilities.pdf

March 22, 2016/0 Comments/by Paula Moyer
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Learning Program Boston President Receives 2016 Educator of the Year Award

Advocacy, Education, In the Media

By Massachusetts Down Syndrome Congress (MDSC) | www.mdsc.org

Congratulations to all our incredible 2016 MDSC Award Winners: 

Heather Hegedus (Fox 25)- Media Award
Julie Messina (3-21 Foundation) – Educator Award
Susanna Peyton & John Campbell – Leadership Award
Melanie Perkins McLaughlin – Allen Crocker Award of Excellence
Market Basket’s Arthur T. Demoulas (represented by Dan Riley and Gary Sessa) – Employer of the Year Award
Gillian & Fran Callaghan – Leadership Award (Not present)

Your work and your speeches yesterday epitomize our mission, our community and our 2016 theme ‪#‎iBelieve‬.

https://www.facebook.com/massdscongress/posts/10154043852803200

March 22, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2015/06/MDSC_Logo_lg.jpg 209 352 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-22 22:06:112016-03-22 22:27:28Learning Program Boston President Receives 2016 Educator of the Year Award

Learning Program Boston Parent Receives 2016 Excellence Award

Advocacy, Education, In the Media

By Massachusetts Down Syndrome Congress (MDSC) | www.mdsc.org

‪#‎WDSD16‬ On Saturday, the MDSC honored Melanie Perkins McLaughlin at our ‪#‎iBelieve‬ Annual Conference with the Allen Crocker Award of Excellence, our most prestigious award, for her incredible breadth of work over the past 8 years advancing our mission.

And yesterday, as if to make our point, she was at United Nations Headquarters in New York City speaking at the U.N.’s ceremonies commemorating World Down Syndrome Day.

Melanie said she met many inspiring and courageous people from around the world, including Qatar, Mongolia, Japan, Korea, Australia, Scotland, South Africa, India, Luxembourg, the Netherlands and UK.The theme of this year’s ‪#‎WDSD‬ events was “the benefits of inclusive environments for today’s children and tomorrow’s adults.”

Thank you once again Melanie for continuing to spread awareness, not only in your hometown of Medford, but throughout Massachusetts and indeed, around the world!

https://www.facebook.com/massdscongress/posts/10154051618283200

March 21, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2015/06/MDSC_Logo_lg.jpg 209 352 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-21 22:23:192016-03-22 22:27:51Learning Program Boston Parent Receives 2016 Excellence Award

World Down Syndrome Day, March 21 | Random Acts of Kindness

Advocacy, Education, In the Media

By World Down Syndrome Day | worlddownsyndromeday.org

In honor of World Down Syndrome Day, the National Down Syndrome Congress and six other national Down syndrome organizations are promoting “Random Acts of Kindness” in the United States.

In collaboration with Down Syndrome Affiliates in Action, Global Down Syndrome Foundation, International Down Syndrome Coalition, International Mosaic Down Syndrome Association, Lumind Foundation and National Down Syndrome Society, we have created a toolkit for WDSD 2015 that you can use to share information about Down syndrome with your community, celebrate people with Down syndrome, and spread a little love and kindness in the name of Down syndrome!

It’s as easy as 1-2-3-4!

  1. On March 21st, wear a t-shirt that says something about Down syndrome (your NDSC Convention t-shirt is a great option!)
  2. Choose an act of kindness, like taking cookies to a fire station, or checking in on an elderly neighbor (we have a list of suggestions to help get you started!)
  3. Print a WDSD postcard and give it out or place it with your Random Act.
  4. Take pictures of the random act and post on your social media pages with the hashtag #WDSD15. We’ll have people on the receiving end of our kindness, and the whole world watching on Facebook and Twitter.

Let’s make this the biggest, best World Down Syndrome Day yet!

How will you celebrate World Down Syndrome Day 2015?

March 20, 2016/0 Comments/by Other
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NDSC: 21 Quotes in 21 Days by 21 People with Trisomy 21

Advocacy, Education, In the Media

By National Down Syndrome Congress | www.ndsc.org

Day 18: Carrie, Rome, New York

“I took the ‘dis’ away from disability and made it my ability to make this world
a better place for all of those with special needs.”

http://www.ndsccenter.org/day-18-21-quotes-in-21-days-by-21-people-with-trisomy-21/

 

March 18, 2016/0 Comments/by Other
https://stagecpanel.321foundation.org/wp-content/uploads/2015/02/ndsc.png 77 262 Other https://stagecpanel.321foundation.org/wp-content/uploads/2020/05/3-21_Foundation_Logo.png Other2016-03-18 20:02:052016-03-20 20:02:42NDSC: 21 Quotes in 21 Days by 21 People with Trisomy 21

Model with Down syndrome stars in elegant wedding photo shoot

Advocacy, In the Media

P.C.: flickr

By Remi Merhi | www.cnn.com

(CNN) Madeline Stuart, an 18-year-old Australian model with Down syndrome, continues to inspire with her latest photo shoot as a beautiful bride.

Stuart is working to change the way people view disabilities.

“She wants people to know that Down Syndrome is a blessing, something to be celebrated,” according to her website.

http://www.cnn.com/2016/03/11/living/madeline-stuart-wedding-photo-shoot-feat/

March 11, 2016/0 Comments/by Other
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